SKU: 1156018874

Navigating the New Frontier in Therapy Care for Individuals with Spinal Muscular Atrophy (SMA): Part I: Overview of SMA, Medical Advancements, Changing Outcomes & Phenotypes

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Description

Navigating the New Frontier in Therapy Care for Individuals with Spinal Muscular Atrophy (SMA): Part I: Overview of SMA, Medical Advancements, Changing Outcomes & PhenotypesDESCRIPTION This course will provide a brief overview to the pathophysiology of SMA, address the FDA approved and currently available pharmacologic treatments, and discuss the influence these treatments have on changing outcomes and phenotypes and impact these may have for in rehabilitation. LEARNER OUTCOMES Upon completion of this course, participants will be able to: Discuss the current available treatments in Spinal Muscular Atrophy and potential

DESCRIPTION
This course will provide a brief overview to the pathophysiology of SMA, address the FDA approved and currently available pharmacologic treatments, and discuss the influence these treatments have on changing outcomes and phenotypes and impact these may have for in rehabilitation.

LEARNER OUTCOMES
Upon completion of this course, participants will be able to: 

  1. Discuss the current available treatments in Spinal Muscular Atrophy and potential impact on pathophysiology of SMA
  2. Recognizes the changing clinical presentation with treatment
  3. Describes general rehabilitation considerations with changes in treatment

INSTRUCTORS
Laurey Brown, PT, DPT, PCS; Katie Hoffman, PT, DPT; Kristin J. Krosschell, PT, DPT, MA, PCS & Christa Weigel PT, DPT, PCS

AUDIENCE
Occupational Therapists, Occupational Therapy Assistants, Physical Therapists, Physical Therapist Assistants

SUCCESSFUL COMPLETION
Participants will watch the on-demand recording in its entirety and complete an assessment and feedback module in the Academy Learning Portal. You will have three months from the date of purchase to complete and review the course material. You will receive a reminder email two weeks before the expiration date. 

CONTINUING EDUCATION CREDITS

Occupational Therapy

The Shirley Ryan AbilityLab is an AOTA Approved Provider of professional development. Course approval ID# 02753. This distance learning – independent webinar is offered at .10 CEUs [intermediate, OT service delivery/ Foundational Knowledge]. AOTA does not endorse specific course content, products, or clinical procedures.

Physical Therapy
The Illinois Physical Therapy Board has approved this course for 1.0 Contact Hours.  Approval #216-000069

Shirley Ryan AbilityLab is recognized by California and the New York State Education Department's State Board for Physical Therapy as an approved provider of physical therapy and physical therapist assistant continuing education for 1.0 Contact Hours on 9/30/2024.

Many states accept continuing education contact hours recognized in other states, enabling professionals to use these hours to meet their licensing or certification requirements. Please consult your state regulations to see if this meets CEU requirements for your license.

DISCLOSURES
Course Directors and Planning Committee Members:
Julie Lenkiewicz, MS, CCC-SLP Has nothing to disclose.
Melissa Kolski, PT, OCS, Dip MDT Has nothing to disclose.
Leslie Marriott, OTR/L Has nothing to disclose.
Selah Bustamante, MSN, RN, CRRN Has nothing to disclose.
Melissa Legreid, MSN, RN, CRRN, NPD-BC Has nothing to disclose.
Speakers, Moderators and Panelists:
Laurey Brown - Receives consulting fees and speaking fees from Biogen; receives speaking fees from Sarepta
Katie Hoffman - Receives an honorarium for serving on the Roche/Genentech Advisory Board
Kristin J. Krosschell - Receives consulting fees from Biogen; receives honorarium and consulting fees from Cure SMA and serves on their Medical Advisory Committee; receives consulting fees from Aspa Therapeutics; receives an honorarium from Roche-Genentech for serving on Advisory Board. Serves as Chair of Rehabilitation Committee for Cure SMA Medical Advisory Council
Christa Weigel - Has nothing to disclose.

ACADEMY POLICIES
For a complete list of Academy policies and technology requirements, click here

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SKU: 1156018874

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4.9 ★★★★★
Based on 21 reviews
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Bernadette Smith
Carnegie, US
★★★★★ 5
Excellent Rivals to Lovers!!
Format: Kindle
The tension and banter between Huntyr and Wold was delectable. I absolutely love the fallen angel and all of his flaws. Huntyr is amazing too being a badass FMC with some major trauma. The world building was great and I enjoyed the training aspect of the story. The writing was immersive and was in the story the whole time. The ending had quite a twist that I hadn’t anticipated and made my jaw DROP. Excellent job! I also loved the narration. Laura is one of my fave narrators!
WAS THIS REVIEW HELPFUL?YesReportShare
Reviewed in the United States on August 15, 2025
E
Verified Purchase
❈ Elizabeth ❈ | Breakawayreads
Chelsea, US
★★★★★ 5
Fallen Angels, fae, vampires, oh my!
Format: Kindle
Rating: 4.5 | Spice: 2 (but a good slow-burn) • Main Characters: Huntyr and Wolf • I couldn’t wait to read this book; there was so much hype about it! And there was no doubt why. I fell in love with the characters and the plot itself. This book is mainly plot driven more than friction driven but it’s easy to follow along with. The characters are fun, easily understood. The main setting is at an academy where both the main characters are going through trials and building strength for the final test, The Transcendent. There are fantastic side characters as well. I loved the camaraderie between Huntyr and her friends. But we don’t like Lanson. 😆 We do have some plot twists that come into play throughout the book. Secrets and betrayal to be seen. I did adore Wolf and Huntyr’s relationship. It was a classic slow burn trope. They didn’t hit it off fast, but in time their feelings grew. I loved their banter, so sexy. Wolf is your next book boyfriend; Huntyr is your next vampire assassin independent bad-a*s female. Themes include loyalty, trust, self-discovery, a true slow burn romance. Side note: book ends on a angsty cliffhanger! • Emily, thank you for writing this awesome novel and I cannot wait to devour Book 2, Blood So Brutal! 😍 • Happy reading, my lovelies! xo
WAS THIS REVIEW HELPFUL?YesReportShare
Reviewed in the United States on January 21, 2024
M
Verified Purchase
MelsABookworm
Boise, US
★★★★★ 4
“My heart bows to you and you only, Huntress.”
Format: Kindle
3.5 🌟 This book popped up in my KU recommended reading suggestions and the synopsis sounded like what I was in the mood for. I'm so glad I took a chance on it. I went into this knowing absolutely nothing about it and ended up really liking it. I love when this happens. The main characters are likeable and I easily found myself rooting for them. There is a mystery element to each of their backstories that I enjoyed watching unfold and can't wait to get more of. Wolf, in particular, has me fixated. Love him. I found this to be an entertaining, addictive read with a plot that moves along at a good pace. It reads so easily I found myself very reluctant to put it down. Lots of twists and turns and the angst is there. A good set up for the next book to come, for sure. My issues with this book....the dialogue feels a bit juvenile at times and there is a repetitive over use of a particular word phrasing that I found myself giving the ole eye-roll to. There are, without a doubt, some pretty cliche moments that gave me a bit of the cringe. I think this could've certainly 100% benefited from more depth regarding the world building. Perhaps the world building was sacrificed to keep the pacing quick? Just a guess. Also, the lack of consistency of character for the FMC was really evident and so she feels quite illogical at times. Overall, this was a fun and enjoyable read that hit the spot well enough for me. That ending certainly has me impatiently pining for book 2!
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Reviewed in the United States on June 18, 2024
A
Verified Purchase
Amazon Customer
Natrona Heights, US
★★★★★ 3
Interesting take on the genre
Format: Kindle
True rating: 3.25 ⭐️ I enjoyed the fresh take on the genre. The best way I could describe the setting and world is an apocalyptic dystopian version of Farie where vampires, fae, and angles struggle to survive in what is left of the world. It was definitely interesting throwing the academy/hunger games aspect into this world as well. Even though I guessed the final reveal early on in the book, I kept hoping I was wrong, and it would take a surprising turn. While the "plot twists" were a bit predictable to me, I still enjoyed the ride this book took me on. Another downfall for me was the plot holes in the world building... I.E. if society has fallen and the world is in the aftermath of war, how are there trains running around the world? Just to take young adults to the trials to get into the golden city? How is the train maintained, the tracks clear, etc? However, I did enjoy the FMC & MMC and thought they were fleshed out nicely. I also enjoyed the side characters but wish some were developed more like Ashalin (sp?). I do find myself rooting for the MCs to succeed and find happiness together, which is obviously an important aspect for romantasy. Overall, was this an earth-shattering, mind-bending, terrific piece of literature? No. But was it the worst thing I've read this year? Also, no. This book has, to me, the bones of a great read & just needs a bit more to push it from an alright book to a great book. Overall ratings: Plot- 3.5⭐️ World building 3⭐️ Spice 2.5 🌶🌶 Main characters 4 ⭐️ Supporting characters 3.5⭐️
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Reviewed in the United States on May 12, 2024
I
Verified Purchase
Irene zamora
Lexington, US
★★★★★ 5
great book
Format: Kindle
I am really excited to meet the author at the book retreat this month. I really enjoyed this world that she built and most of the female main character Huntress is so awesome. She goes through a lot in this book and the ending; wow! I wouldn't have even guessed. I highly recommend everyone to read this book. I have been so lucky this year that almost all the books I have read have been, so far, 5 out 5 stars.
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Reviewed in the United States on June 2, 2026

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